CCSVI - Multiple Sclerosis (MS) Surgery
CCSVI - An Imminent Vascular Danger within the MS Patient Community
Currently CCSVI is a known vascular irregularity - This is a corrective issue which is known to affect most MS patients properly screened for the condition. Serious vascular problems are known to cause many MS like symptoms.
"An apple a day keeps the doctor away"
- The Doctor - Speak to your neurologist
- The Charity - Apples? I didn't even know big pharma sold apples.
- The Pharmaceutical - Apples don't work, we have a lifetime solution.
- The Neurologist - There is no such thing as an apple. What is an apple?
- The Vascular Surgeon - Please, just let the patient eat the apple!
A doctor is accustomed to referring you to a neurologist (The Specialist) for any MS issues. These specialists is rarely understand in vascular procedures but are reluctant to let go of their clients (MS Sufferers) in fear of losing them for good. MS charities are protecting their financial future and expansion plans. The pharmaceuticals don't want a corrective procedure get in the way of a lifetime of medications. Vascular surgeons are familiar with vascular treatments, with a little specialist training can screen & treat most patients with a minimally invasive procedure.
Think veins, think numbness, think tingling, think dizziness, now think CCSVI.
Chronic cerebro-spinal venous insufficiency (CCSVI) was initially described by Dr. Paolo Zamboni on 2008, and the first international symposium took place in 2009, in Bologna, Italy.
Italian vascular surgeon Paolo Zamboni and his team of researchers conducted a study of abnormal blood flow in major veins from the brain to the heart. This study highlighted an abnormally high presence of iron content in the basal ganglia and thalamus, considered to be due to a reflux in the drainage, caused by changes to shear stress in veins.
"In the last few years, researchers have recognized the presence of increased iron content in the basal ganglia and thalamus. This in itself suggests the possibility of venous damage in MS. But the interest and association of MS with veins dates back to Putnam in the 1930's (and much earlier than this as well) and then later to Fog in 1964 followed by a major decade's long effort to convince people of the role of the mechanical effects of changes in venous flow by Schelling. However, more recent evidence by Paolo Zamboni and his team suggests that MS might be caused by a chronic cerebral spinal venous insufficiency (CCSVI). It may be that changes in shear stress can cause a biological response that is very similar to what we see in MS (see for example the work by John Bergan. In fact, it is a logical explanation as to why the entire brain is affected in MS, why the disease tracks backward along the venous drainage system, and why it emanates from the white matter near the ventricles in the drainage of territory of the medullary veins."".
Roughly ten years earlier, Dr. Zamboni observed the same accumulations in his wife Elena. The symptoms of her MS abated after he removed the obstruction by chelation of her veins.
Elana has experienced no relapses since. The result of the subsequent study sent shockwave's across the medical world.
The comparatively standard procedure to unblock affected veins involves inserting a catheter, and carefully threading it up through the blood vessels in the subjects groin.
A re-stenosis can occur. A small balloon can then be inflated to clear out any blockage . A clearance of the blockage is not always possible due to safety issues surrounding stenting. More studies are required but in most CCSVI conditions, stenting can be avoided, and doctors can perform a standard and relatively risk free operation.
There is one report on a dislodged stent requiring an open-heart surgery. One patient died from a hemorrhage some time after implantation. The MS Society continue to latch on to this sad story, but reality tells a very different story.
Despite MSSociety have opted to persuade MS patients to join them in a bid to get two new MS tablets (drugs), fingolimod and cladribine approved by the National Institute of Clinical Excellence.
Death did not halt phase 3 trials for fingolimod which has been associated with potentially fatal infections, skin cancer and, recently, a case of haemorrhaging focal encephalitis, an inflammation of the brain with bleeding.
Cladribine is a scarier prospect, its a potent antineoplastic agent with potentially significant toxic side effects. A number of deaths have been associated with this drug.
"MSRC is very encouraged by the early results of Dr Paolo Zamboni’s work. There is no doubt that this area warrants a great deal more study. This could represent a completely novel approach to MS research which, if proven to be relevant, could be a “sea change” in the understanding of the mechanisms involved in the condition. There has already been a huge amount of interest about this study and MSRC will continue to report on any and all developments in this very important area. MSRC looks forward to the results of the further trials that are taking place and hopes that these studies are able to reproduce the findings of Dr Zamboni.” - Helen Yates MSRC Chief Executive
CCSVI and Multiple Sclerosis
This short video illustrates vain blocks in CCSVI associated to multiple sclerosis, related diagnosis and treatment.
A growing number of top medical professionals are being inspired into action, following up Professor Zamboni's CCSVI research.
Zamboni's ideas on MS are not unique, we have several historical links supporting his views. The slightest mention of CCSVI currently has MSSocieties running for cover. MS is viewed as a job for life, for many. It is sad to admit, but many want to keep this CCSVI away from public scrutiny.
I strongly advise you all to dig deeper into CCSVI for your own good, you will be surprised how much you will understand. This information needs to reach out to the public. Certain parties don't want to push this further because the percentage of MS patients scanned have displayed an irregularity (CCSVI).
Why are we not checking for problems we can now find? Ask your government.
Our government in the UK posted poorly thought out response to CCSVI. -despite 10,000+ signature petition. I am very surprised they voiced the words of MSSocieties in their weak response. Not even an attempt to hide the fact that CCSVI has progressed in that time. Their response will be torn to shreds within the CCSVI community. Holes are creeping into anti-CCSVI Campaigner yarns.
Gordon Brown(PM). You response to CCSVI is out of date and has already been covered in detail. It completely undermines your knowledge of the subject. CCSVI may be your last election day. Please ensure your PR staff do their homework before making crucial statements concerning public health.
MSSociety Advisor's provided the UK Government with this misleading information. It was considered inaccurate back then, more so now. MSSociety proudly march on with their latest drug campaigns, requesting public funding and support as ever. Do they really want to find a cure for MS ? I have my own opinion on that.
"They are not convinced by the evidence that blockages to draining veins from the brain are specific to people with MS, or that this explains the cause of MS at any stage of the condition."
" The greatest good you can do for another is not just to share your riches but to reveal to him his own." - Benjamin Disraeli
Vascular comorbidity is associated with more rapid disability progression in multiple sclerosis. - 8,983 MS Patient Study
CONCLUSIONS: Vascular comorbidity, whether present at symptom onset, diagnosis, or later in the disease course, is associated with a substantially increased risk of disability progression in multiple sclerosis. The impact of treating vascular comorbidities on disease progression deserves investigation.
In Laymen's terms, A vascular problem/s is substantially linked to rapid progression of Multiple Sclerosis related attacks.
Comorbidity is common in MS - In medicine, comorbidity describes the effect of all other diseases an individual patient might have other than the primary disease of interest. - Wiki
Comorbidity delays diagnosis and increases disability at diagnosis in MS.
CONCLUSION: Both diagnostic delay and disability at diagnosis are influenced by comorbidity. The mechanisms underlying these associations deserve further investigation.
We have the vascular link to multiple sclerosis. We now know how to find (at least) some of the vascular problems. We can now safely correct this.
Yes, more study needs to be done to refine CCSVI but MS patients are in desperate need of treatment now. Is it ethical to deny them this? Stranger still, is it ethical to deny them the chance of screening, for this dangerous condition?
" I expect to pass through life but once. If therefore, there be any kindness I can show, or any good thing I can do to any fellow being, let me do it now, and not defer or neglect it, as I shall not pass this way again. " - William Penn
Economic Impact of a Simple MS Treatment
The multiple sclerosis (MS) market has estimated revenues in excess of eight billion dollars. The news of this simple but revolutionary approach has the MS drug industry on edge. The financial implications imply not everyone will benefit, if Dr. Zamboni's breakthrough proves to be key to eradicating MS.
Is Finance holding back MS Healing?
The World Health Organization estimated that there are over 2.5 million people with MS. This relatively simple procedure could turn out to be an extremely effective, drug free, long term solution. The quality of life of 2.5 million people, including my sister rest on the success or failure of this new method. The American media appear to have played down the possibility of an inexpensive cure for MS.
CCSVI Treatment Skeptics are Challenged
Under the intense scrutiny of skeptics, Dr. Zamboni has remained firm. His results speak for themselves. There is a regularly updated forum, dedicated to the real time progress of people who are currently undergoing CCSVI treatment. Dr Zamboni is not claiming to have found one the medical fields biggest ever discoveries. He is just asking them to prove the process wrong or re-allocate resources and help him advance this research.
What Can We Do?
Dr Zamboni has put forward some pretty solid evidence that this could be a successful treatment. This response has been slow, but as more and more people read and go through the actual process, this vision is gaining momentum.
All we can ask you to do is look at the facts. Many of it is written by people who have benefited from Dr Zamboni's research. The first barrier to get over is the testing on CCSVI, which currently is not readily available.
Essentially we must strive to raise awareness. We are looking to concerned bloggers to keep this subject in the limelight until this surgical procedure becomes mainstream. Dr Paolo Zamboni offered a hypothesis, pointing out that any delay in the treatment of this problem will only result in a worsening situation for the patient.
We need to give MS sufferers the opportunity to look at this overwhelming evidence. If you, your family members or anyone who is affected by MS, now is the time to make your voice heard. point them to this website, give them the opportunity to follow the progress of real time CCSVI experimental patients.
Here is a very good blog post about the CCSVI findings, from a concerned MS patient.
This group in facebook regarding CCSVI should not be ignored. There you will find news as it's happening. The evidence is mounting for action, not next month, year, or whatever, we need things done now.
Here is another blog just started up by Ginger McQueen, her story must be heard, MS, CCSVI, Liberation Surgery & Me, she also has a great video presentation Requesting help from Canadian Vascular Surgeons and Interventional Radiologists.
An updated video of Ginger illustrating life before and after her CCSVI treatment in Poland .
One of Northern Ireland's leading heart surgeons has CCSVI treatment twice. He is know one of Dr Zamboni's biggest supporters.
Diagnosing CCSVI and it's subsequent unblocking seems to be the only logical way forward. This needs to be done now. The connection of CCSVI and MS can be worked out in time. MS is a degenerative disease and does not wait for time. The screening and treatment should not be delayed any more.
Fix the known blockage. If it is found, we know it shouldn't be there so just remove the blockage. This blockage is connected to MS because there is a high level found in MS patients. Why don't we just test all 2.5 million of the MS sufferers and treat all with the blockage? Who knows? If we go on the current evidence we will save billions of dollars on medications that only have a slowing down effect.
This is a gamble every MS patient I have spoken to, who knows about CCSVI is willing to take. They accept that this might not be the miracle cure they were looking for, and their hope dashed, once again.
Reason tells us that if safe, screening, and subsequent mass testing, should be done without delay. It can be argued that any unnecessary delay to a potentially effective treatment, can only harm the individual harboring a degenerative disease, commonly referred to as MS. Some go further to say it is highly irresponsible.
CCSVI should be front page news in every newspaper in the world, it should be embraced and heavily researched by every charity organization that collects in the name of affected people. On the evidence already presented this delay to broader research appears unreasonable.
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