Contact me : ccsvi@ymail.com
My sister Susan was Diagnosed with MS 2 years ago. Being a degenerative disease with no known cure I felt there was nothing I could do, other than hope. I have no medical background. My expertise lies within web design and research.
I began looking into CCSVI and felt myself becoming overwhelmed with frustration. I had a feeling of total apathy until my partner Veronica, suggested I write an article on the subject. That's when I realized I could do something positive.
I researched CCSVI in more depth, looking at both the positive and negative effects of the treatment. The biggest down side I could find was that this is not a one-cure-for-all procedure. I don't want to build up the hopes of patients, only for them to find out that, if they get the treatment, it might not be effective.
CCSVI is found in MS patients but not in healthy individuals. The first logical step is to have patients tested for CCSVI. If positive, surgeons need to correct the blockage or malformation. Dr Zamboni has done this in his own country, so have doctors in Poland, USA and Canada.
This is a degenerative disease, and people are dying with MS related illnesses. As Doctor Zamboni warned, the longer we leave it, the less effect this treatment might have. If medications and diet only slow down the progress of the illness, should we not clear the path for these highly skilled professions, to allow them to re-open the blockage, a blockage that is found in MS patients but not healthy individuals?
I am based in Scotland, UK, and will not stop until I have exhausted every possible avenue, to get CCSVI recognized, and treated in this country. I hope this website will inspire someone else do do their own research, be it patient, family member, friend, doctor or neurologist. All I can do, is ask you look at the growing evidence with an open mind, before rejecting it. If you think there are any inaccuracies on this website, please contact me.
There is a growing number of us unwilling to accept the "There's not enough evidence," response. We are racing against time, tests have already been carried out, the results have been staggering. The aim is to stop MS symptoms, and so far this treatment is proving effective for many. Modern MS drugs can only slow down the progress of the disease.
Currently pro CCSVI campaigners have been hit by a wall of negativity, but no one has proved the surgery does not work. If this procedure is a relatively safe job, why can't we not provide the patients themselves the opportunity,. to take the chance that it might not work.
CCSVI could turn out to be one of the biggest finds of the century. Not only could it be possible for this corrective surgery to improve the quality of lives, for many MS sufferers, it could also be a drug free, cost effective solution. This in turn, will allow for further funding into the study of MS, and hopefully a complete understanding, and eradication of the disease.
If you are wishing to contact me for more Information, I will do whatever I can to help but what I do suggest is direct your questions to ThisIsMS CCSVI forums. There You will find a wealth of reading material that will answer most of your questions.
I have listed the main categories at forums, it should help answer many of your burning questions. Please read the information provided to avoid repetition. This is a serious forum, so please respect it!
Newbies Please Visit here first
Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Known Risks/Complications of Angioplasty and Venous Stenting
making CCSVI charitable contributions
Also, if you are a member of facebook or wish to join, there is a group dedicated to CCSVI, where you can keep up to date, with the latest developments on the subject.
Contact me : ccsvi@ymail.com
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