MS Treatment - The Gatekeepers

CCSVI is a vascular condition and can often be treated with balloon angioplasty. The procedure normally only takes 15 minutes, or so. More than half the MS patients in a huge MS clinical trial showed a vascular blockage or restriction. Removing this problem has lead to remarkable improvements for many MS patients .

Any plumber will tell you that if it's blocked, it should be unblock it. If the sink gets blocked again, "get your plunger out" and unblock in again. Simple strategy.

CCSVI is blocked or restricted veins. I spoke to a woman who had a stroke recently, she smokes as if it's going out of fashion, had angioplasty treatment, and back on her feet, in weeks, she said "I haven't felt this good in years."

A Simple Treatment

CCSVI has a relatively easy fix, and several experienced vascular surgeons have already performed this task. MS Society Medical advisors don't appear keen to look for vascular irregularities in MS patients, for some reason, and plan to keep them from trying to locate them, for safety reasons, apparently.

For any progress into CCSVI we need MS Society's approval. Not only do they control our ever flowing donations, they also represent the public voice for MS patients. Just as well I don't work as a troubleshooter because I'd have run out of bullets by now.

The MS Society's main focus is to look for a cure for MS and very little focus has been given to the vascular side of MS. After rumors circulating of a vascular problem in many MS patients, the MS Society came to our savior and reassured us,

"More research is needed to pin down any relationship between CCSVI" - MS Society, 25 Nov, 2009.

Before the MS Society's discovery, an italian group, lead by Dr Zamboni had been perfecting this treatment for 3 years." Dotted throughout the last century were clues to vascular problems, but they don't fit in with MS Society theory.

A Lucky Find - MS is Clouded with Mystery

Serendipity is the effect by which one accidentally discovers something fortunate, especially while looking for something else entirely. Well done to Dr Zamboni & others for helping so many MS patients see dramatic improvements to their quality of lives.

It is not known if CCSVI is a self inflicted condition, or if it's the cause of MS, nonetheless, over 50% of the MS population are expected to have it. In the MS Society's defense have never known success when it comes to cause and cure but to their credit, march bravely on seeking the approval for new MS drug fueled opportunities .

The Gatekeepers of the Unknown

"The treatment for CCSVI is not available for patients with multiple sclerosis in the United Kingdom because there is no convincing evidence to suggest that it is safe or beneficial to people with MS."  UK MS Society - AtoZ for MS Research - 9th April, 2010

It's a shame, the MS Society don't share the urgency to screen and treat people for a newly visible, and treatable condition, but their top brass continue down the spiral of unnatural drug interventions. Their initial study of CCSVI will only be to understand the relationship between CCSVI & MS, not to diagnose and treated the ever growing MS population, they have deemed themselves responsible for.

MS Society advisors wont approve mass testing of patients even though this would advance the understanding immensely, and wont approve treatment until they have their own snail paced, extensively drawn out study in the name of MS. So there you have it, CCSVI screening and treatment is not expected to happen any time soon. Is it any wonder multiple sclerosis is an unknown illness?

"The amount of time and funding required to investigate CCSVI will be significant. It is impossible to predict an exact timeline or budget needed to move any theory from hypothesis to reliable therapy." - MS Society Canada Research - 9th April, 2010.

So that's your answer to the CCSVI fiasco. The MS Society's are going to take an extended time to catch up, will be doing the usual donations thing, they're not sure how long this will take, don't have a clue how it will affect them financially. Other than that, they tell us they lead the world with CCSVI.

Many are taking extra risks traveling abroad because MS Society Medical Advisors do what they do to the best of their ability.

 

Poland - Like Lourdes with Better Results

There are a few places in Poland that carries out the screening and treatment. Many former patients say "it's like a mini Lourdes only with better results," but it's blocked in most countries (no pun intended) because the MS Society don't have much clinical knowledge as they put it.

MS Society - Government Advisors?

On 31 March, 2010, the UK government published a response from those who begged for CCSVI checking and treating. Most of the 10,000 who signed it are directly effected by MS in some way. The response :

"We are not convinced by the evidence that blockages to draining veins from the brain are specific to people with multiple sclerosis, or that this explains the cause of multiple sclerosis at any stage of the condition." UK Government - 31st March, 2010

The UK Government merely voiced an assessment of MS Society Advisor's. I can accept they have given the MS Society, legal guardianship for the MS suffering public, but they should have at least addressed the request themselves, or even offer an adequate answer.

Clinical Decisions v Common Sense

People just want to be screened and treated, they might want to know if it explains the cause of MS, they might want to know if only MS patients have this condition. Does it really matter? They need attention now.

The MS Society don't want people to get screened outside a clinical trial, worse still, more than half of the MS patient community are expected to have this problem, but it doesn't matter, our MS Society Advisors are busy trying to figure out questions that could never be explained away with their "MS is an auto-immune" theory.

Gloom & Doom of Scotland - Recipe for Disaster

I live in Scotland & from the vague database of information we've collected on MS, Scotland has the highest density of MS occurrences in the world. We also have miserable weather and are known for our heavy drinking and terrible eating habits.

Our old school football pitches were closed for years because it was full of toxic waste. That would explain the egg shell weight of the stones we used to throw around a each other, for fun. The funny thing was, when they barricaded it off, people could no longer take the short cut to the main street. On heavy, rainy, muddy days, we often found ourselves face down in it, after the customary, heavy scottish tackle, usually from someone who thought he was a world class defender/forward.

Scotland is only a small country but has over 10,000 people with this deadly, unknown condition. More than 50% of people who have been tested with MS, are diagnosed with CCSVI. New MRI technology means we no longer have to look for a needle in the haystack and can pinpoint problems. The screening doesn't take long, nor does the angioplasty treatment, as any smoker who has gone through the similar procedure, will tell you. We are talking minutes, not hours.

Headless Chickens and Dangerous Labels

If we treated 40 patients a day, we could go around the entire scottish MS population within a year. Many are left devastated with this life shortening, quality of life crushing, illness. Let's face it, the MS Society are running around like a bunch of headless chickens, with a known condition and treatment, already tried and tested, staring back at them.

Maybe they're a little unsure of vascular problems, have been left frustrated chasing so many dead ends with their autoimmune, tunnel vision of MS, but it's unfair to control the destiny of others, especially if they cannot understand that people with MS, CAN ALSO HAVE VASCULAR ISSUES.

In 1996, the US National Multiple Sclerosis Society, categorized MS into 4 sub groups. This could be a red herring, as we are merely categorizing an unknown condition. Maybe this is why they cannot see past this restrictive MS Tag, many patients feel victimized by.

The MS Society Medical Advisors, are do not appear to understand that MS people do get vascular problems. Funnily, they get it twice as often as a normal person, in clinical terms. All I see, is self imposed barriers to understanding.

How do they expect to "think outside the box?" I do not see a future for MS patients in their hands. I was deeply shocked to hear of JK Rowling's painful exit from MS Society Scotland. She thinks outside the box, and has been deeply effected by MS, in her lifetime. Who better to listen to?

Medical Clinical Trials & Marijuana

People cannot think past clinical trials these days because modern society squeezes everything into a pill or inhaler. I don't know why I found this hilarious but stumbled upon marijuana medicine. I thought to myself, a drug into a drug? Marijuana is a plant. Christians will probably describe it, as a flower of god. It's a part of nature, plants were the earth before us and, in all likelihood, outlast the human race, unless we have some chemical disaster, started by us.

Natural Clinical Trials - Knowing Your Body

I come from a sporting background, so through the years I started to understand my own body well. When I was in competitive shape, I could tell you my weight within an ounce or two. I was a runner for the best part of 20 years, and like all competitive runners, knew my weight, and physical condition. I always knew when I was about to come down with an illness, and when I was ready for some big performances.

People should get to know their own body, as it will be the first and last physical thing they have. I noticed that many within the MS community feel discriminated against, due to the MS tag. Quite right I say! why should some clinical term be used to neatly label an illness we know very little about.

The MS Nail Technician

If my sister breaks her finger nail, does she get a highly train MS nail technician, with the seal of approval from the hugely successful MS society, though their Medical Advisors? Of course not. By the time they get round to working out all their clinical possibilities, she would either have fingers like tree trunks or they will have shaped themselves by when she bit them.

Gatekeepers of CCSVI & Self Imposed Boundaries

Conventional thinking has found no cure, as the gatekeepers for CCSVI screening & treatment, the MS Society, do their thing in the only way they know how. Meanwhile, Kuwait doctors has started screening & Treating all of their MS diagnosed citizens.

"So we say this is a vascular problem in the neck. Patients, when you dilate the veins, they feel better. We don't have to talk about MS or the link to MS,"

"Patients will be warned that the procedure is experimental, and the potential risks of venoplasty will be detailed in consent forms".

Well done to the Kuwait government for taking direct action, but I suspect it will zoom by MS Society advisors, who we trust dearly with our health.

Faceless Society - Loaded Gun

If you have MS, remember, this is your own personal health these faceless people are controlling. CCSVI has been found in over 50% of patients tested.

With these kind of statistics in mind, you will soon realize you are the walking time bomb, and the gatekeepers have no intention of approving mass CCSVI screening or treatment, any time soon.

I will leave you with a quick little poem on the MS Society & CCSVI

1. If you are affected by MS, get back in the queue,
2. As the MS Society have a list of other things to do.
3. Forget about the time bomb, follow their advice.
4. It's not their body with this life crushing vice.

How the National Multiple Sclerosis Society Harms MS Patients - "It’s gatekeeper syndrome — they can’t fathom why a MS patient would want to gather useful health-care info without waiting for “controlled trials,” -

Gatekeepers Syndrome - In your life you will encounter many gatekeepers, people invested with a certain amount of power who can grant or refuse you access to something you need or desire.

The Gatekeeper Syndrome - Reflections on Power and Type - The gatekeepers of research have that power, and they are capable of using it for good or for evil—to promote the finding and sharing of new knowledge or to block it—to foster research or to squelch it.

Synchronicity (Wikiapedia) - Since meaning is a complex mental construction, subject to conscious and subconscious influence, not every correlation in the grouping of events by meaning needs to have an explanation in terms of cause and effect.

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